I am thankful for Sofie's birth mom, or as we call her, her China Mom. While we do not know all the circumstances surrounding her decision to give her child a better life, I am sure it was not an easy decision. So many people judge these women and don't understand how they can just give their children up so easily. I do not think it is an easy decision. Some may be more pragmatic about it but I think the pain, worry and anguish stay with them always. I have talked to Jim's birth mom about this. She stated that there isn't a day that goes by when you don't wonder where they are, what they are doing or if they are happy. It is an unimaginable decision to have to relinquish your child because of a law, economic circumstances, cultural differences or a medical condition that you cannot afford to take care of. I am sure their are many other reasons, too many to get into. I am very grateful to Sofie's China Mom for giving us the opportunity to raise Sofie and to have our lives touched by her wonderful spirit. I think of her often and I hope that her Mama can one day gaze up at the moon and know somewhere deep in her heart that her child is loved and cared for and is doing well :)
Thursday, November 29, 2012
Wednesday, November 28, 2012
Day 28
One year ago today we saw this sweet little face for the very first time. I am so very thankful for that day.
One year ago today we saw our daughter's face for the very first time. I still remember that day like it was yesterday. Ainsley was still awake when we got the call. I didn't want to look at the referral in front of her as we had turned down 3 referrals prior and I did not want to disappoint her. Our agency told me her details over the phone and when she got to her date of birth, 8-14-2009, I knew instantly that it was her. It was our daughter. Her birth date and our wedding anniversary are on the same day. I knew it was her without even looking at a photo or reading her whole file. Her picture sealed the deal and I could have cared less what was in her medical file. I knew that, finally, we had found our baby and all the pain and anguish over the last few years was suddenly just erased. I am so very thankful and blessed!
It is a strange thing to see a picture of your child and still not know exactly when you are going to go see her and bring her home. To know that everyday she is growing and changing and you are missing out on it. It is the hardest wait I have ever done.
We received the results from Sofie's CT Scan of her ears. It was totally normal. She had some under pneumatization of her mastoid air cells which is normal for cleft kids and kids with ear tubes. So the good news is that there is nothing structurally wrong with her ears and nothing that can get worse. There is nothing that is going to require surgery. It is sort of a relief to know that she won't have to have any more surgery in the near future. Now all we are waiting for is the genetic test results which will take 4-6 weeks. We may never know why she lost her hearing. It is clear by the fact that she can say some words that she was able to hear at some point. According to her paperwork from the orphanage and her reports from Love Without Boundaries, she could say the words mama and baba. I am grateful she is too young to remember any of it. I cannot imagine how strange and scary it must be to be able to hear and then for it to fade. I finally feel like we are starting to move forward. We know what we are dealing with and can do what we need to do to help Sofie learn to talk. She is such a spunky, smart little girl that I don't think she will have much of a problem over coming anything :)
One year ago today we saw our daughter's face for the very first time. I still remember that day like it was yesterday. Ainsley was still awake when we got the call. I didn't want to look at the referral in front of her as we had turned down 3 referrals prior and I did not want to disappoint her. Our agency told me her details over the phone and when she got to her date of birth, 8-14-2009, I knew instantly that it was her. It was our daughter. Her birth date and our wedding anniversary are on the same day. I knew it was her without even looking at a photo or reading her whole file. Her picture sealed the deal and I could have cared less what was in her medical file. I knew that, finally, we had found our baby and all the pain and anguish over the last few years was suddenly just erased. I am so very thankful and blessed!
It is a strange thing to see a picture of your child and still not know exactly when you are going to go see her and bring her home. To know that everyday she is growing and changing and you are missing out on it. It is the hardest wait I have ever done.
We received the results from Sofie's CT Scan of her ears. It was totally normal. She had some under pneumatization of her mastoid air cells which is normal for cleft kids and kids with ear tubes. So the good news is that there is nothing structurally wrong with her ears and nothing that can get worse. There is nothing that is going to require surgery. It is sort of a relief to know that she won't have to have any more surgery in the near future. Now all we are waiting for is the genetic test results which will take 4-6 weeks. We may never know why she lost her hearing. It is clear by the fact that she can say some words that she was able to hear at some point. According to her paperwork from the orphanage and her reports from Love Without Boundaries, she could say the words mama and baba. I am grateful she is too young to remember any of it. I cannot imagine how strange and scary it must be to be able to hear and then for it to fade. I finally feel like we are starting to move forward. We know what we are dealing with and can do what we need to do to help Sofie learn to talk. She is such a spunky, smart little girl that I don't think she will have much of a problem over coming anything :)
Tuesday, November 27, 2012
Day 27
Today I am thankful for ALL the organizations in China who work on behalf of the children. They navigate through complicated political waters and different social customs and beliefs, but, they always have the children's welfare in mind. I know that in prior posts I have mentioned the two organizations that impacted Sofie's life in China. There are SO many more people that do such amazing work and they all need our help. If you have any spare change this holiday season, please consider giving part of it to one of these agencies. You could change the life and health of a child and possibly set them on the road to finding their forever family :)
Monday, November 26, 2012
Day 26
Today I am thankful for our dog, Shiloh!! Her whole world was turned upside down when a certain toddler arrived and took over the house. Both has adapted well to each other even though they were both terrified of each other at first. They are now the best of friends.............................it could have something to do with all the food that Sofie drops :)
Sunday, November 25, 2012
Day 25
Today I am thankful that it is one month until Christmas. I can hardly wait!!!! This will be our first Christmas with Sofie and I am so excited. Last year we made her a part of Christmas. She had presents under the tree and Ainsley was in charge of opening them for her. We then put them aside to save them for her when she came home. She loved them. She also has some personalized ornaments on the kids Christmas Tree that I cannot wait to show her. This year will be so much better with her actually here :)
Saturday, November 24, 2012
Day 24
Today I am thankful for new friends. Our neighbors down the street have friends whose son and daughter in law adopted a little girl from just outside of Hefei the week after we were there. We have emailed back and forth,but never met. They live in Illinois, but were in town for Thanksgiving so our neighbors arranged a get together for all of us at their house. It was a lovely afternoon and the kids had so much fun together. They have a older daughter the same age as Ainsley and their youngest is just a few months younger than Sofie. It was so nice to hang out with a family just like ours :)
Friday, November 23, 2012
Day 23
Today I am very thankful that Sofie's CT Scan is now done and the labs for her Connexin 26/ 30 genetic hearing test have been drawn. It is, hopefully, the last test she will have to have for a while. I say hopefully because we usually end up having to have another test done once we get the results of the previous tests. I am being cautiously optimistic. I was also a test that was almost not done today...........funny story!
Sofie has been fighting a cold for about a week now. It stayed the same up until a few days ago when it got worse. No fever, just a nasty cough and a runny nose. We had started preparing ourselves for the fact that they may not be willing to sedate her for her CT. The CT is quick but it is a lot of radiation and very thin cuts through her ear and if she moved in the slightest it would be ruined and have to be repeated hence more radiation. She also wouldn't be able to have her hearing aids in for the CT so she wouldn't be able to hear me either yelling at her to hold still :) Sedation just works better, that, and she had to have an IV to have the labs drawn and I really didn't want to have to sit on her to have that done either.
We decided to head in as the cough starts to get better once she is upright and moving around for a while. Ainsley had to come with us too so she hid upstairs to eat her breakfast while we got Sofie ready as Sofie had to stay NPO, nothing to ear or drink.......anesthesia airway rules and we already have an airway full of snot. Sure enough, her cough started clearing up a little so off we went. Jim did a car sweep for hidden snacks before we headed out. About half way there, Ainsley says " ummmmm, I forgot Sofie couldn't have anything and I accidentally gave her a Mike 'n Ike's candy just now".................WHAT!!!!!! I thought Jim was going to stop the car on the freeway and get out to strangle Ainsley. I lunged into the back seat and did a quick mouth sweep....no candy, only the sinister grin from a certain 3 year old! The look on her face was...I showed you! NO BREAKFAST HA HA HA!!! You could have heard a pin drop the rest of the way to the hospital. You see, it is a bad thing when you are an anesthetist and your child is having anesthesia at your place of employment and your kid shows up in violation of the NPO rule.....because of a tiny candy! It just looks bad. Wow, did we hear some jokes from EVERYONE :) They decided that her cough wasn't that bad and that the candy could be treated as a liquid because it was all sugar, not a solid. We only had to wait two extra hours until they would sedate her. It was very strange sending her for the CT. Because she is sleeping and sedated we don't go with her. It was a strange feeling sending my child by herself, sort of, to go have a test done that I do at work. I so badly wanted to go down to Radiology and quiz the Tech that was doing her scan. The old 20 questions- how long you been doing this and I am just going to stand here behind you and watch to make sure you are not going to mess it up :) I didn't. The Anesthesiologist kept an eye on everyone for me and reported back that all went well. No coughing in the middle of the scan.....whew!
So that is over. We should have the CT results on Monday. The genetics test will be anywhere from 4-6 weeks so I am not even going to think about it.
You have to hand it to Ainsley, she was honest. I am not sure that at that age, under those circumstances I would have said a word to anyone. She totally fessed up immediately and told us what she did.......she is always very good at tattling on herself. No harm done......thank you :)
Sofie has been fighting a cold for about a week now. It stayed the same up until a few days ago when it got worse. No fever, just a nasty cough and a runny nose. We had started preparing ourselves for the fact that they may not be willing to sedate her for her CT. The CT is quick but it is a lot of radiation and very thin cuts through her ear and if she moved in the slightest it would be ruined and have to be repeated hence more radiation. She also wouldn't be able to have her hearing aids in for the CT so she wouldn't be able to hear me either yelling at her to hold still :) Sedation just works better, that, and she had to have an IV to have the labs drawn and I really didn't want to have to sit on her to have that done either.
We decided to head in as the cough starts to get better once she is upright and moving around for a while. Ainsley had to come with us too so she hid upstairs to eat her breakfast while we got Sofie ready as Sofie had to stay NPO, nothing to ear or drink.......anesthesia airway rules and we already have an airway full of snot. Sure enough, her cough started clearing up a little so off we went. Jim did a car sweep for hidden snacks before we headed out. About half way there, Ainsley says " ummmmm, I forgot Sofie couldn't have anything and I accidentally gave her a Mike 'n Ike's candy just now".................WHAT!!!!!! I thought Jim was going to stop the car on the freeway and get out to strangle Ainsley. I lunged into the back seat and did a quick mouth sweep....no candy, only the sinister grin from a certain 3 year old! The look on her face was...I showed you! NO BREAKFAST HA HA HA!!! You could have heard a pin drop the rest of the way to the hospital. You see, it is a bad thing when you are an anesthetist and your child is having anesthesia at your place of employment and your kid shows up in violation of the NPO rule.....because of a tiny candy! It just looks bad. Wow, did we hear some jokes from EVERYONE :) They decided that her cough wasn't that bad and that the candy could be treated as a liquid because it was all sugar, not a solid. We only had to wait two extra hours until they would sedate her. It was very strange sending her for the CT. Because she is sleeping and sedated we don't go with her. It was a strange feeling sending my child by herself, sort of, to go have a test done that I do at work. I so badly wanted to go down to Radiology and quiz the Tech that was doing her scan. The old 20 questions- how long you been doing this and I am just going to stand here behind you and watch to make sure you are not going to mess it up :) I didn't. The Anesthesiologist kept an eye on everyone for me and reported back that all went well. No coughing in the middle of the scan.....whew!
So that is over. We should have the CT results on Monday. The genetics test will be anywhere from 4-6 weeks so I am not even going to think about it.
You have to hand it to Ainsley, she was honest. I am not sure that at that age, under those circumstances I would have said a word to anyone. She totally fessed up immediately and told us what she did.......she is always very good at tattling on herself. No harm done......thank you :)
Thursday, November 22, 2012
Day 22
Today I am thankful for everything and everyone!! I have been so very blessed in my life............from family, friends and acquaintances. I am so very lucky to have both of my daughters and my wonderful husband in my life. Life is good. I am truly thankful. I love all of you dearly and you mean the world to me. As Ainsley put it so eloquently this morning...."Today, I am thankful. I am thankful for my sister!!"
May this coming year be good and gracious to all of you. Happy Thanksgiving to your family from the Ducharme's :)
May this coming year be good and gracious to all of you. Happy Thanksgiving to your family from the Ducharme's :)
Wednesday, November 21, 2012
Day 21
OK, this is getting harder and harder to do. Today I am thankful for my Mom. I am super thankful for my Dad too, I love him dearly, but, my Mom is my Mom. She understands what it is like to be a Mom. She has stood by me through our whole adoption with love and support. She offered me good advice when I didn't want to hear it and a long distance shoulder to cry on when I needed it. I wish she was not so far away. I thank you Mom and Dad for all you do and for just being there for me when I needed you.........unconditional love :)
Tuesday, November 20, 2012
Day 20
Today I am thankful for my daughter Ainsley, again :) Today was special persons day at school. Due to the fact that we do not have family close by, Ainsley's special people are usually me and my girlfriend Debbie. This year it was me, Debbie and Sofie. Ainsley was so excited that her sister would be at school with her. She got up this morning at 6:30!!!!! got dressed, went downstairs, let the dog out and fed the dog then put pancakes in the toaster for both herself and her sister. She told me that she knew I would have a busy morning with Sofie and special person's day so she just wanted to help out :)
Monday, November 19, 2012
Day 19
Today I am thankful for online social networking. I NEVER thought I would hear myself utter those words. It has allowed me to connect with so many other Mom's and Dad's who have gone through or are going through the adoption process. It has allowed me to develop a huge support network and, thus, has allowed me to help Sofie and Ainsley better. Instead of jumping into things without any knowledge other that what I read in a book, I can talk to an actual person who has gone through the same thing...........priceless information :)
Sunday, November 18, 2012
The Movie
So yesterday, as I posted earlier, I went to see Somewhere Between. WOW!!!! The director of the documentary was there to answer questions after the movie. What an amazing experience. I was so totally unprepared for the movie. I knew before going that they mentioned Sofie's orphanage in the film. I was not prepared for how much it was featured in the film. It is a must see for anyone who has adopted from China, know someone who has adopted from China and especially any family who has adopted from Hefei.
Anyone who doesn't want the movie's content spoiled stop reading now :)
It was a wonderful movie that features 4 girls all of whom were adopted from China, live in the US and are in their early teens. They each have a unique opinion of what it is like to be transracially adopted. They all seem to struggle with identity and where they fit in, not in their families, but in society. I cannot wait for the day that Sofie gets to watch it. It is so raw and real and they just tell it like it is. I won't go through the whole movie, it is amazing and I don't want to ruin it for anyone. It gets released for sale on DVD in February and it was shown on TV Ontario in Canada. Go see it if you can!!!!
So like I mentioned, Sofie's orphanage was featured in the film. One of the girls was born just outside Hefei and she travels back there frequently to help in the orphanages with the children. She met a little girl with CP and raised money to pay for her therapy at the Hefei Children's Welfare Institute, where Sofie spent 2 1/2 years. It follows the older girl and, as she calls her, the little girl in pink. She visits her often and the little girl refers to her as older sister. It also follows her as she is adopted by her family. I was watching the film when they mentioned Hefei and my heart jumped and I thought "wow, how neat." Then they showed the lobby of the orphanage and I think I just about fell out of my chair. They showed the hallways that we walked down, the doors and the little windows that we looked in. By this time I was full on sobbing. It it such and emotional day, the day you go to visit your child's orphanage with your newly adopted child. You meet her nanny and you see how upset she is that she is seeing Lu Jing Jing for the last time. The scenes from the orphanage just brought all that back with am immense and very quick force. By this time I am quietly sobbing, quietly cause I don't want to make a fool out of myself. If I was at home it would have been full on sobbing! A thought then pops into my very foggy head. What a priceless gift this woman has given us. Sofie's orphanage moved this past summer to a brand new place outside of town. Like everything in China I am sure it will be torn down and a new building will be built in it's place. Many adoptees travel back to China to see their finding spot and to visit their orphanage. They try to connect with their past. Sofie will never have that. She will never get to see the place where she spent the first 2 1/2 years of her life. She will only have pictures and now, a movie.
I walked up to the director after the film and told her thank you. Thank you for making such a wonderful movie and thank you for the gift that you have given my daughter. She will be able to see at least snippits of where she lived forever. And yes, I was bawling my eyes out at this point like I am right now :)
Anyone who doesn't want the movie's content spoiled stop reading now :)
It was a wonderful movie that features 4 girls all of whom were adopted from China, live in the US and are in their early teens. They each have a unique opinion of what it is like to be transracially adopted. They all seem to struggle with identity and where they fit in, not in their families, but in society. I cannot wait for the day that Sofie gets to watch it. It is so raw and real and they just tell it like it is. I won't go through the whole movie, it is amazing and I don't want to ruin it for anyone. It gets released for sale on DVD in February and it was shown on TV Ontario in Canada. Go see it if you can!!!!
So like I mentioned, Sofie's orphanage was featured in the film. One of the girls was born just outside Hefei and she travels back there frequently to help in the orphanages with the children. She met a little girl with CP and raised money to pay for her therapy at the Hefei Children's Welfare Institute, where Sofie spent 2 1/2 years. It follows the older girl and, as she calls her, the little girl in pink. She visits her often and the little girl refers to her as older sister. It also follows her as she is adopted by her family. I was watching the film when they mentioned Hefei and my heart jumped and I thought "wow, how neat." Then they showed the lobby of the orphanage and I think I just about fell out of my chair. They showed the hallways that we walked down, the doors and the little windows that we looked in. By this time I was full on sobbing. It it such and emotional day, the day you go to visit your child's orphanage with your newly adopted child. You meet her nanny and you see how upset she is that she is seeing Lu Jing Jing for the last time. The scenes from the orphanage just brought all that back with am immense and very quick force. By this time I am quietly sobbing, quietly cause I don't want to make a fool out of myself. If I was at home it would have been full on sobbing! A thought then pops into my very foggy head. What a priceless gift this woman has given us. Sofie's orphanage moved this past summer to a brand new place outside of town. Like everything in China I am sure it will be torn down and a new building will be built in it's place. Many adoptees travel back to China to see their finding spot and to visit their orphanage. They try to connect with their past. Sofie will never have that. She will never get to see the place where she spent the first 2 1/2 years of her life. She will only have pictures and now, a movie.
I walked up to the director after the film and told her thank you. Thank you for making such a wonderful movie and thank you for the gift that you have given my daughter. She will be able to see at least snippits of where she lived forever. And yes, I was bawling my eyes out at this point like I am right now :)
Day 18
Today I am thankful for my husband who stayed home with two sick kiddos so I could go see Somewhere Between. Jim, you are the best :)
Saturday, November 17, 2012
Day 17
Today I am thankful for the documentary Somewhere Between. I saw it today and all I can say is WOW!!!!!! and thank you !!!!!!
http://www.somewherebetweenmovie.com
http://www.somewherebetweenmovie.com
Friday, November 16, 2012
We have them!!!!
Sofie got her hearing aids at 10:30 this morning. She has been wearing them all day and hasn't even messed with them once. Wow there was a lot of stuff that the audiologist had to show us about them. Jim and I are complete and total losers trying to get them in her ears. Her little ear canals are so small that they are really hard to get in.
When she first put them in Sofie's ears, I almost started crying. The look on her face was sheer terror. The audiologist still had to program the noise reduction and the feedback cancellation. Once that was done, Sofie really started to calm down. She then proceeded to talk for the next hour non stop :) She couldn't get enough of hearing herself talk and on the way out of the building, she stopped, and turned toward the heater that was blowing air. She was enthralled with the sound of blowing air!!
A friend on mine relayed a story to me about when her daughter got her aids and how amazed she was at the sound of birds chirping. I love that story and thank you so much for sharing it with me! Our story isn't quite as emotionally moving......... it is very funny though........and very Sofie :)
We took Sofie out for lunch after and part way through lunch, she signed to me that she had to go potty. Off we went to the restroom and low and behold she actually went this time. When I lifted her off the toilet the automatic flush activated.........whooooosh. This is not the first time that Sofie has been around an automatic toilet when it flushed. She turned toward it with a look on her face of complete amazement. She started jumping up and down and yelled out a huge WOOOOOWWWWWWW!! She kept pointing to the toilet yelling WOOOOOWWWWWW the whole time. She wanted me to make if flush again and again. Anyone listening probably thought we were nuts! Typical Sofie :)
Ainsley was so excited this morning when she left for school. At sharing (show and tell) today she told everyone that her sister was getting her hearing aids today and that when she got home from school, Sofie would really be able to clearly hear her for the first time :) She melted my heart!!!
When she first put them in Sofie's ears, I almost started crying. The look on her face was sheer terror. The audiologist still had to program the noise reduction and the feedback cancellation. Once that was done, Sofie really started to calm down. She then proceeded to talk for the next hour non stop :) She couldn't get enough of hearing herself talk and on the way out of the building, she stopped, and turned toward the heater that was blowing air. She was enthralled with the sound of blowing air!!
A friend on mine relayed a story to me about when her daughter got her aids and how amazed she was at the sound of birds chirping. I love that story and thank you so much for sharing it with me! Our story isn't quite as emotionally moving......... it is very funny though........and very Sofie :)
We took Sofie out for lunch after and part way through lunch, she signed to me that she had to go potty. Off we went to the restroom and low and behold she actually went this time. When I lifted her off the toilet the automatic flush activated.........whooooosh. This is not the first time that Sofie has been around an automatic toilet when it flushed. She turned toward it with a look on her face of complete amazement. She started jumping up and down and yelled out a huge WOOOOOWWWWWWW!! She kept pointing to the toilet yelling WOOOOOWWWWWW the whole time. She wanted me to make if flush again and again. Anyone listening probably thought we were nuts! Typical Sofie :)
Ainsley was so excited this morning when she left for school. At sharing (show and tell) today she told everyone that her sister was getting her hearing aids today and that when she got home from school, Sofie would really be able to clearly hear her for the first time :) She melted my heart!!!
Day 16
Today I am very thankful that Jim switched shifts and got today off so that he could come with Sofie and I. It is nice not to have to do this by myself. It is always nice to have company when you are leaping into the great unknown :)
Thursday, November 15, 2012
Day 15
Today I am thankful that Sofie will FINALLY get her hearing aids tomorrow! So very happy and thankful.
It is a strange experience to know that your child cannot really hear what you are saying to them clearly. She understands so much, yet, the clarity of the words is missing. It is even a stranger experience knowing that tomorrow she will clearly hear me and other sounds for the very first time. The emotion that goes with it is almost overwhelming. I am excited, scared and very nervous about tomorrow. It kinda feels like you are taking a huge, exciting leap off a cliff without a parachute and you have no idea where you are going to land. I have no idea what to expect and absolutely no expectations about tomorrow. That is a huge leap of faith for a slightly organized control freak such as myself. I will be flying by the seat of my pants tomorrow. Wish us luck :)
It is a strange experience to know that your child cannot really hear what you are saying to them clearly. She understands so much, yet, the clarity of the words is missing. It is even a stranger experience knowing that tomorrow she will clearly hear me and other sounds for the very first time. The emotion that goes with it is almost overwhelming. I am excited, scared and very nervous about tomorrow. It kinda feels like you are taking a huge, exciting leap off a cliff without a parachute and you have no idea where you are going to land. I have no idea what to expect and absolutely no expectations about tomorrow. That is a huge leap of faith for a slightly organized control freak such as myself. I will be flying by the seat of my pants tomorrow. Wish us luck :)
Wednesday, November 14, 2012
6 Months Ago Today
Where do I even start with Day 14 of Thankfulness! Today, it has been 6 months since we met a very quiet, scared little girl in the Civil Affairs Office of Hefei, Anhui Province, China. It has gone by so fast that I cannot believe it has been 6 months already, yet, it feels like she has been a part of our family forever.
Sofie on our Family Day May 14, 2012 Hefei China
......and Sofie now!!!!
I look back at the pictures and I cannot believe how much Sofie has changed. Her eyes that were once so blank are now so full of life.....and that smile!!!!!
Today also fills me with so much emotion. This little girl has added so much to both mine and Jim's life, but, also an enormous amount to Ainsley's life. She has given us more than we can or ever will be able to give her. Her addition to our family has created a most wonderful relationship......... sisters. To be able to witness the bond of sisterhood form between two little girls is a tremendous honor and such an awe inspiring thing. They truly love and adore each other. I am so very thankful for that :)
I am thankful for all the twists and turns, ups and downs that led us to each other. As difficult as they were at the time, I truly believe that we were supposed to find each other. I know not everyone thinks that way, but, for us it rings true. If one thing had gone differently or been completed faster, we both would not have been in the place we both needed to be at in order for her referral to find us.
If you had asked me 6 months ago where I thought we would be at right now at this moment, I would have said that all of Sofie's surgeries for now would be done and we would be settled into a schedule and a routine. We would have speech therapy already underway and life would be a little more predictable. You think I would have learned by now that life has surprises in store for you all the time and it usually doesn't work out quite how you think it will. I did not imagine that at this point we would still be undergoing medical tests and seeing more specialists. I did not imagine that hearing aids and audiology appointments were in our future either. It is what it is and we can handle anything. All I have to do is watch Sofie for a couple of minutes at any particular doctor's office and it totally puts me back in my place. This little girl can handle anything that life throws at her. The least we can do is be there to support her and provide her with all the tools she needs to succeed. She is amazing, much stronger than I ever could be. She has survived so much and never seems frustrated or overwhelmed, unless, you tell her that she can't have any more Halloween candy!!!! She always seems to lead us through every difficult moment with her little smile that says "come on guys you can do this. We can do anything together."
I have come to realize that I have not had very many fuzzy warm posts on the blog lately. We have had to handle a lot of stuff and this is a way for me to get it out and deal with it. If you are looking for a fuzzy blog you have come to the wrong one!! I hope, though, that I am not coming across as too whiny and complaining or a drama queen. I also write this blog with the hopes of helping just one adoptive family get through the wait or helping them prepare for what happens once they get home with their new family. I feel I would be doing them a disservice if I sugarcoated everything. It is difficult, all of it, from beginning to after you are home. The first 6 months home are really hard. It is OK....it does get better. The moments of joy far outweigh the heartache. It is the hardest, most rewarding best thing we have ever done. I would do everything all over again and not change a thing. We have been given challenges that we were not expecting, but, that is the joy of adoption. You never know what you are getting into, but, you find out how strong you are as an individual and as a family. You find out that you truly can handle anything that life throws your way......all you need is that high voltage super awesome smile and all is right and good with the world :)
Our very first Sofie smile!!!!!!
Tuesday, November 13, 2012
Day 13
Today, I am very thankful for our medical insurance. If you had asked me that last year I would have said no. Turns out, it is pretty good insurance when you really need pretty good insurance. We are very thankful and realize that others are not so lucky. It is one less thing to have to worry about :)
Monday, November 12, 2012
Genetics Appointment Done
Well, we got stuck in traffic because it snowed 1/4 inch, in Minnesota. Totally slowed everything down and I ended up being late for our appointment even though I left early. Fortunately, everyone else was late too so it ended up being no problem.
They examined Sofie from head to toe and the genetics counsellor, nurse practitioner and the Geneticist all determined that Sofie in no way has any type of syndrome and in fact her hearing loss has nothing to do with her cleft. Yeah!!!!........say what????? It had not even entered my mind that Sofie's hearing loss could be independent of her cleft. No one had ever mentioned it, at all. I was stunned, shocked and for a change at a total loss for words. Even Jim was wondering what was going on with me. It took me all day to process it. It still doesn't change anything....but what a curve ball. At one point they stated that they thought her hearing loss was due to chronic ear infections and may get better. That was the part that left my brain racing. It took me all day to figure out why. It would be great if that happened. The only problem is, and this is what my little brain was trying to wrap itself around all day, there was no indication of any ear infections in any of her medical files. I do realize that the information from China is not always totally truthful, but, even her Love Without Boundaries information said nothing about ear infections. She hasn't had a single ear infection since she came home and, in fact, when they put her ear tubes in, there was no fluid in the ear at all. I am being cautiously optimistic on this one.
The other cause of her hearing loss could still be a genetic issue. There is one protein on a chromosome that is associated with hearing loss. It is called the Connexin 26 or Connexin 30. It has been shown to be the cause of hearing loss in a number of ethnic groups. They will therefore run a full genetic sequence on Connexin 26 and 30 to determine if that is the cause. She will also have a CT Scan of her ears to rule out any boney abnormality. And then again, we may never know why and that is OK too :)
The CT Scan is on November 23 and the genetic results take as long as 4 weeks.
They examined Sofie from head to toe and the genetics counsellor, nurse practitioner and the Geneticist all determined that Sofie in no way has any type of syndrome and in fact her hearing loss has nothing to do with her cleft. Yeah!!!!........say what????? It had not even entered my mind that Sofie's hearing loss could be independent of her cleft. No one had ever mentioned it, at all. I was stunned, shocked and for a change at a total loss for words. Even Jim was wondering what was going on with me. It took me all day to process it. It still doesn't change anything....but what a curve ball. At one point they stated that they thought her hearing loss was due to chronic ear infections and may get better. That was the part that left my brain racing. It took me all day to figure out why. It would be great if that happened. The only problem is, and this is what my little brain was trying to wrap itself around all day, there was no indication of any ear infections in any of her medical files. I do realize that the information from China is not always totally truthful, but, even her Love Without Boundaries information said nothing about ear infections. She hasn't had a single ear infection since she came home and, in fact, when they put her ear tubes in, there was no fluid in the ear at all. I am being cautiously optimistic on this one.
The other cause of her hearing loss could still be a genetic issue. There is one protein on a chromosome that is associated with hearing loss. It is called the Connexin 26 or Connexin 30. It has been shown to be the cause of hearing loss in a number of ethnic groups. They will therefore run a full genetic sequence on Connexin 26 and 30 to determine if that is the cause. She will also have a CT Scan of her ears to rule out any boney abnormality. And then again, we may never know why and that is OK too :)
The CT Scan is on November 23 and the genetic results take as long as 4 weeks.
Day 12
Sunday, November 11, 2012
Another round of appointments
Tomorrow is Sofie's Genetics appointment. I am not sure how I am feeling about it. Not scared. She is amazing and wonderful and no matter what the results may be, it changes nothing. She is still Sofie.
For those of you who don't know, Sofie is being tested for several different syndromes. Which ones, we will find out the details tomorrow. Because she has what they term as two midline "defects" ( I hate that term) and her type of hearing loss is a little atypical for a cleft kiddo, they are worried that she could have a genetic syndrome. The only thing it will change is that we will have a definitive prognosis of things to watch for in the future and she will be able to determine her risks if and when she decides to have children of her own.
As for me, I am not looking forward to tomorrow. I have heard all the advice from people. Don't worry about it, it will all be OK. Don't worry unless they tell you to worry about something. I totally appreciate all the support and everyone trying to keep me calm and grounded. I cannot imagine how difficult it is going to be to listen to them go through each syndrome, it's characteristics and how it may affect her and not start crying. That is my goal tomorrow, not to bawl my eyes out in the Genetics Clinic. I am bringing Kleenex just in case :)
For those of you who don't know, Sofie is being tested for several different syndromes. Which ones, we will find out the details tomorrow. Because she has what they term as two midline "defects" ( I hate that term) and her type of hearing loss is a little atypical for a cleft kiddo, they are worried that she could have a genetic syndrome. The only thing it will change is that we will have a definitive prognosis of things to watch for in the future and she will be able to determine her risks if and when she decides to have children of her own.
As for me, I am not looking forward to tomorrow. I have heard all the advice from people. Don't worry about it, it will all be OK. Don't worry unless they tell you to worry about something. I totally appreciate all the support and everyone trying to keep me calm and grounded. I cannot imagine how difficult it is going to be to listen to them go through each syndrome, it's characteristics and how it may affect her and not start crying. That is my goal tomorrow, not to bawl my eyes out in the Genetics Clinic. I am bringing Kleenex just in case :)
Day 11
I am very thankful for our wonderful families. They stood by us through thick and thin, good and bad, happy and sad. They have celebrated all the milestones in our adoption journey and also held our hands in the darkest moments when we thought that our adoption journey would finish without a happy ending. They gave us hope, love, encouragement and most of all wonderful advice. They have also accepted and love Sofie unconditionally. We are truly blessed :)
Saturday, November 10, 2012
Day 10
Today I am thankful for Sofie's ENT surgeon who did her palate repair and lip revision this summer. We were very lucky in that all the ENT surgeons in this group also have a plastic surgery rotation under their belt. They are therefore able to do both the palate and the lip revision. He did an amazing job and is truly an artist. He also specializes in ears too so if she should happen to need something in that area, we have it covered.
He is on the board of directors of a group that does mission trips to repair clefts in kiddos all over the world and has in fact traveled for many of these missions. He truly cares about what he does and about the kids :)
He is on the board of directors of a group that does mission trips to repair clefts in kiddos all over the world and has in fact traveled for many of these missions. He truly cares about what he does and about the kids :)
Friday, November 9, 2012
Day 9
Today I am thankful for all of our guides while we traveled in China. They were wonderful. Not only did they expose us to a wonderful, very different culture, they also made sure that all of the paperwork was in order and that everything was looked after. All we had to do was concentrate on Sofie :)
Thursday, November 8, 2012
Day 8
Today I am thankful for Sofie's nanny in China. She did a wonderful job looking after Sofie. I will be eternally grateful to her for teaching Sofie how to trust and love. It makes everything else after they are adopted, a little bit easier. Not easy, just easier. Once they learn how to trust and love, it is like the pathway has been formed and they can then bond to others more easily. We are eternally grateful to her :)
Wednesday, November 7, 2012
Day 7
Today I am thankful for adoption tax credit. Because of this, many families are able to adopt and many more kids find their forever families. I am hoping that both parties in our government can see past all the numbers and make the adoption tax credit permanent.....for the kids :)
Tuesday, November 6, 2012
Day 6
Today I am thankful for all of the wonderful friends that I have made along this journey, most of whom, I have never met. I have a group of friends that I have made online who have held my virtual hand and sent me virtual hugs at every up and down that we have experienced. There support has been amazing. They all just get it, without an explanation, because they have been there and done that. They don't need to ask why or how.
I also have some awesome friends who have held my hand, listened to my whining, wiped my tears and given supportive hugs. They have also shared with us the great joy of looking at our daughter's picture for the first time. You all know who you are.
To both kinds of friends.....I say THANK YOU :)
I also have some awesome friends who have held my hand, listened to my whining, wiped my tears and given supportive hugs. They have also shared with us the great joy of looking at our daughter's picture for the first time. You all know who you are.
To both kinds of friends.....I say THANK YOU :)
Monday, November 5, 2012
Day 5
Today I am thankful for Sofie's relationship with Jim. It was not too long ago that Sofie was attached to me 24/7. It is so amazing to watch her relationship with Jim grow and develop. There is no better feeling than watching her choose to head out the door with Jim, happily, and say her little Bye Bye to me. She knows that I have always been here, am always here, will always be here. Trust :)
Sunday, November 4, 2012
A Sofie Story
I was talking to a friend on Facebook the other night when we veered off topic and I ended up telling her a Sofie story. She got a huge kick out of it and told me how one day this story will surface again and be told over and over, much to Sofie's probable dislike. I decided then that I should probably put this story in black and white print so my frail and ever failing brain will not have to remember all the details. It is a baptism story, Sofie style!
We arrive at the church for Sofie's baptism on time and I have no idea how that happened. At first Sofie was a little timid, kind of cautious. She always likes to scope out the situation, takes it all in, before jumping in with both feet. She settles down and then starts to explore. She is walking up and down the pews, stepping on every one's feet stopping every once in a while to flash someone her amazing smile. She does this until the choir starts singing. She is intrigued by it, but, more intrigued by the book we are all holding in our hands. She is fascinated with books and reads them out loud. This book is different though, you sing the words in it....her other favorite thing to do, sing. She can't do either, read or sing, but don't tell her that! Sofie does not want to share my hymn book, she wants her own book. She is working on the sharing thing too. Of she goes again and in a few minutes, she comes back with a hymn book for herself. It is a large hymn book so she keeps dropping it on the wood pew which makes a huge banging echo. I try to take the book away from her and try to get her to share mine. NO GO! She takes off again and continues her journey up and down the pews, this time with the hymn book. Finally, it is our turn to stand at the front of the church for the baptism. I think nothing more about the hymn book and the service continues on without a hitch.
Later, we go out to a hotel for brunch with all our family and friends. We are having a lovely time, but, Sofie is starting to get bored so I go looking for her little bag of toys that she takes everywhere with her. From the first day we met her, Sofie has carried around a little bag or back pack of toys or whatever has caught her fancy. There is usually a toy cell phone, one of our old cell phones, a little music player, one of Jim's wire bikes, the tags off her dress that we bought her in China ????? and whatever else she can find for that day. I pick the bag up and it is very heavy. I start pulling stuff out trying to find her cell phone so she can send a text, yes she does that too! I then pull out a rather large HYMN BOOK from church!!!! I turn to Sofie and the look on her face is pure joy and a "look what I got in my little bag Mommy!!!!" She is so proud of herself and really not happy when I make her walk it over to the Minister, who is also out for lunch with us, and give it back. I have no idea when she stashed it or how she even got it into the bag. It was about the same size as the bag. That must have taken some kind of effort.
I am not sure what it means when you commit a theft at your own baptism....................... :)
We arrive at the church for Sofie's baptism on time and I have no idea how that happened. At first Sofie was a little timid, kind of cautious. She always likes to scope out the situation, takes it all in, before jumping in with both feet. She settles down and then starts to explore. She is walking up and down the pews, stepping on every one's feet stopping every once in a while to flash someone her amazing smile. She does this until the choir starts singing. She is intrigued by it, but, more intrigued by the book we are all holding in our hands. She is fascinated with books and reads them out loud. This book is different though, you sing the words in it....her other favorite thing to do, sing. She can't do either, read or sing, but don't tell her that! Sofie does not want to share my hymn book, she wants her own book. She is working on the sharing thing too. Of she goes again and in a few minutes, she comes back with a hymn book for herself. It is a large hymn book so she keeps dropping it on the wood pew which makes a huge banging echo. I try to take the book away from her and try to get her to share mine. NO GO! She takes off again and continues her journey up and down the pews, this time with the hymn book. Finally, it is our turn to stand at the front of the church for the baptism. I think nothing more about the hymn book and the service continues on without a hitch.
Later, we go out to a hotel for brunch with all our family and friends. We are having a lovely time, but, Sofie is starting to get bored so I go looking for her little bag of toys that she takes everywhere with her. From the first day we met her, Sofie has carried around a little bag or back pack of toys or whatever has caught her fancy. There is usually a toy cell phone, one of our old cell phones, a little music player, one of Jim's wire bikes, the tags off her dress that we bought her in China ????? and whatever else she can find for that day. I pick the bag up and it is very heavy. I start pulling stuff out trying to find her cell phone so she can send a text, yes she does that too! I then pull out a rather large HYMN BOOK from church!!!! I turn to Sofie and the look on her face is pure joy and a "look what I got in my little bag Mommy!!!!" She is so proud of herself and really not happy when I make her walk it over to the Minister, who is also out for lunch with us, and give it back. I have no idea when she stashed it or how she even got it into the bag. It was about the same size as the bag. That must have taken some kind of effort.
I am not sure what it means when you commit a theft at your own baptism....................... :)
Day 4
Today I am thankful for Half the Sky Foundation. They are a wonderful charity that works in Chinese orphanages. The began in 1998 when a group of adoptive parents led by Jenny and Richard Bowen started an organization to help improve conditions in Chinese orphanages.
From HTS website:
From HTS website:
In 1997, Jenny and Richard Bowen adopted a toddler from a welfare institution in southern China. From that day, they received a harsh, first-hand education about the harmful effects of institutionalizing small children: their little girl suffered from severe delays and, most worrisome, she was emotionally shut down. Vacant. But after just one year of non-stop loving attention and care from her new family, she was transformed. Truly… a butterfly emerged from that lonely cocoon.
How easy it was to make all the difference in the life of one small child!
What if you could do the same for the many children in China who wait for families – and for those who will never be adopted? It was a simple idea. Why not?
And so, in 1998, Half the Sky, named for the Chinese adage, "Women hold up half the sky,"* was born.
*Although, even today, 95% of healthy abandoned infants are girls, the issue of child abandonment and the reasons behind it grow increasingly complex as China develops. Half the Sky serves all children residing in China's welfare institutions, regardless of gender or the circumstances that brought them there.
They have done phenomenal work in China. HTS states that it has trained 8758 child care workers and helped 63 959 children, yet, there are still 989 541 children still waiting...in one country. There are between 143 and 210 MILLION orphans world wide at this time. When you sit down and read the statistics, they are mind boggling!
We are very grateful to them for taking such good care of Sofie, Lu Jing Jing as she is known to them. She had one main nanny who cared for her and she grew up with the same children. I have pictures of her as a baby and growing up with her friends. I have her life book which documents the first 2 1/2 years of her life. You don't normally get this at all. We are so fortunate and blessed to have all of this information....it is priceless. More importantly, Sofie has a past and it is documented in words and in pictures :)
Saturday, November 3, 2012
Day 3
I am thankful for our eldest daughter Ainsley. Most children wait 9 months to meet their new siblings. Ainsley waited 3 years. She was 4 years old when we started our journey and has gone though countless delays and a complete change of where we were adopting from. When we switched to the China program, someone at school said to Ainsley, "I thought your sister was in Ethiopia." Her explanation sums it up perfectly....." Well, we thought she was in Ethiopia, but, it turns out she has been waiting for us in China the whole time. We just didn't know it!" She absolutely adores her sister and the feeling is mutual. I have never seen two little girls who get so excited to see each other when they have been apart, even if it is only for a short time.
Friday, November 2, 2012
Day 2
I am thankful for Sofie' effervescent smile. It simply lights up a room, melts people's hearts and will do wondrous things in this world.
Thursday, November 1, 2012
Day 1
Every day during November, families who have adopted post what they are thankful for. I will post here what I post on Facebook.
DAY 1- My family is complete, my heart is full. I am thankful for my two girls :)
DAY 1- My family is complete, my heart is full. I am thankful for my two girls :)
National Adoption Month
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