Slowly Improving

Sofie is slowly getting better day by day, at least during the daytime hours anyway. Night is another story.

She is still being a super picky eater. She turns down almost everything. She will eat egg whites with cheese, some ice cream, some Pediasure, some mushed up pancake, puree lasagna (????) and brown sugar. The latter was because Mommy gave up and I don't care what she eats anymore as long as it has calories. She is a little happier during the day and has been playing more and more. Ainsley seems to have gotten over the lack of attention from Mommy and Daddy and is being very helpful with Sofie.

Nighttime is a totally different thing. Sofie falls asleep no problem but wakes up at some point during the night. She then is very restless and coughs and sounds like she is choking for the rest of the night. The fluid just seems to build up in her mouth and she has problems breathing and swallowing when she is laying down. I have tried propping her up on pillows but she is so restless she just rolls all over the place. Needless to say, whoever is lucky enough to be sleeping with her, does not sleep much. That would be me :)

Her surgeon has now prescribed prednisone to try and reduce her swelling and secretions a little quicker. Hopefully that will help with her breathing at night and we can all get some sleep :)